A cystectomy to remove part or all of the bladder is common in bladder cancer. Full recovery from a cystectomy can take several months as your body heals from surgery. If your bladder is removed, you’ll need time to adjust to living with a stoma or other form of urinary diversion. Be kind to yourself as you heal, follow your doctor’s advice and ask your friends and family for practical help as you recover.
Post-surgery healing
After several days of hospital care post-surgery, you should be ready to be discharged. However, be aware that mild complications are relatively common and if they occur, you’ll need additional medical care or even readmission.
Post-operative complications following a cystectomy most commonly include urinary tract infections (UTIs), wound infections or blood clots. If you detect any signs of infection or a fever, contact your healthcare team immediately.
Pain management
When you return home, you’ll still need some pain relief as your incisions heal. Effectively managing your pain will make you more comfortable and support your body as it recovers. Contact your doctor if your pain increases or doesn’t lessen as you heal.
Physical activity
Light physical activity on a daily basis is recommended to help support recovery and avoid post-operative complications. Short walks and time out of bed, standing or sitting are all beneficial.
Fatigue is to a common aspect of post-operative recovery, so listen to your body and rest when you need to.
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Diet and nutrition
A nutritious diet with a good balance of protein and fiber is a key aspect of your post-operative recovery. If you had a radical cystectomy and urinary diversion, your bowls will also be recovering. Eating small meals throughout the day and avoiding too much fats or fiber will help your bowls heal.
It is also important to stay hydrated: Not drinking enough water can increase your risk of developing a UTI. Staying hydrated will also help avoid constipation.
Practical support at home
When you first return home after surgery, it’s helpful to have a friend or family member stay with you for several days.
During the following days and weeks, don’t be afraid to ask for help and accept any offers of practical support for household tasks, food preparation and family responsibilities. Guide your friends and family by being specific about how they can help you during your recovery period.
Urinary diversion
If your cystectomy was a radical cystectomy to remove the entire bladder, your surgery will have included urinary diversion. Though there are several forms of urinary diversion, you’re mostly likely to have an ileal conduit, and recovery will include learning to change and empty the pouch, manage leaks and keep the surrounding skin clean and healthy.
Learning to live with an ostomy and its impact on daily life, body image and mental health will take some time. Take advantage of the support and resources offered by the hospital as you adjust to life with an ostomy. Speaking to a counsellor or therapist will provide valuable support as you manage your emotional response.
Returning to normal life
Choosing when to return to work and other activities will depend on how you feel physically and emotionally. It may take one to two months or more before you feel ready. Take the time you need and don’t go back too early.
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